“We are dismayed by the Government’s continued indecision around funding for back pay.” Mencap
The Government recently issued an update regarding the sleep-in crisis. They have decided to delay the decision on funding of overnight sleep-in care back pay liabilities for at least another 12 months.
This decision in no way helps provide long-term reassurance to people with a learning disability that their care and homes are secure. You can read more information and Mencap’s response in Mencap’s official press release.
The changes to ‘sleep-in’ payments are putting at risk vital support from thousands of disabled people which allows them to live a safe and independent life. The £400 million bill for the care sector could mean the end of social care as we know it. Mencap’s petition aims to #StopSleepInCrisis by calling on the Government to fix the problem that they have caused.
PS. If you’ve already signed the petition, thank you! You can still help by sharing the campaign with your friends and family and encouraging them to sign the petition too.
Telling the story of the struggles that parents and relatives of disabled children face every day, will help to build understanding and support among the public. If we do this, together we can make a real difference to the lives of all disabled children, young people and their families.
But, to build understanding, we need parents to tell us about their lives. We need parents to reveal the part of their lives that people do not see. Their Secret Life of Us.
Are you a parent or a relative of a disabled child? Share your story about what life is like for families with disabled children.
You can share your story:
Hear from some of the parents who have already shared their story. If you would like to write a blog or make a video, please email the Disabled Children’s partnership.
Thousands of people have already signed up to the campaign and supported on social media. We need to build on this and tell as many stories as possible, improving understanding and awareness.
Millfield school in Somerset hold an annual fun day for people with a learning disability in the excellent facilities on the school grounds. The whole school is involved with the event, with the school’s pupils acting as guides on the day.
The event has been running for over twenty years and is packed full with a variety of activities with something to suit everyone, including drama, tennis, cooking, art and crafts. Over 700 people regularly attend this fantastic annual event.
Activities and lunch are all included for £1 per person.
Timings: 10am – 4pm
Date: Saturday 24th June 2017
Address: Millfield School, Street, Somerset, BA16 0YD
Email Emma or speak to your Club Leader about attending, as names must be registered in advance through SWM. SWM are providing two minibuses for New Horizon Club members primarily.
Mencap know if you have a child with a learning disability, one of your biggest worries is making sure they’re looked after when you’re no longer around.
If you have questions about the nitty gritty, including wills, trusts, the Court of Protection and Powers of Attorney, ask them on FamilyHub.
Katherine, Director at Renaissance Legal, is online to answer your queries.
Mencap’s video: Financial planning for a child with a learning disability
We know that if you have a child with a learning disability, one of your biggest worries is making sure they’re looked after when you’re no longer around.
Our Wills and Trusts service is here to help you understand the financial options available, and offer advice on this difficult topic.
The seminar will provide information on how families and carers can ensure that someone with a learning disability is provided for financially when their parents or carers are no longer around, by making a suitable will or setting up a trust.
When your loved one has a learning disability, it is important that measures are in place to ensure a secure financial future. This seminar is an ideal place to get started – you will be able to find valuable information and legal advice on wills and trusts, as well as gaining peace of mind.
11 May 2017 in Bristol – book here
8 November 2017 in Swindon – book here