Monthly Archives: August 2017

Fragile Xpedition

What is the FragileXpedition?

The FragileXpedition is a virtual challenge that everyone can get involved in, to help us collectively travel the 8,026 miles of the entire outline of the UK.  It is a big challenge but it’s a great opportunity to raise both funds and awareness for the Fragile X in a fun, inclusive way that everyone can take part in.

When is it?

This year’s event launched in August and will run until Fragile X Awareness Day on Tuesday 10th October 2017.  All miles logged during this time will be added together to reach our target of 8,026 miles – the equivalent of the outline around the UK.  We are hoping to beat last year’s amazing total so go get those hiking boots, swimming costumes or trainers on!


Fragile X Syndrome is the most common inherited cause of learning disability, and the leading single-gene cause of autism. Its effects are variable, but individuals commonly experience communication issues, severe anxiety and epilepsy. It is a lifelong condition. Fragile X is a family of genetic conditions and multiple members of families may be living with varying effects of this genetic change. You can find out more via the tab above.


Just click to register and you have started your journey.  Once you have created your fundraising page, you will be sent your FragileXpedition supporters pack. Follow our hints and tips on how to promote your support of the FragileXpedition to family, friends and colleagues. Let them know what you are doing to support us and most importantly, why you have decided to take part.

Salisbury Street Collection

Many volunteers will be in Salisbury City Centre on Saturday 23 September to collect vital donations for South Wilts Mencap.

You can help by volunteering your time; just 1 hour will make a huge difference. Please contact Emma with your details and what times you can help with the street collection.

All donations received go directly to support, inspire and enable people with learning disabilities and their families from Salisbury and South Wilts.

Wiltshire and Swindon Community Messaging

communitymessaging-logoYou can join Wiltshire and Swindon Community Messaging to participate in the exchange of information with Wiltshire Police, Neighbourhood Watch and Action Fraud.

When signing-up for Wiltshire and Swindon Community Messaging you choose how you wish to receive information – by email, text or voicemail.

Examples of messages that you may receive include community policing news and events, details of area crime trends, appeals for information, crime prevention advice and outcomes of court cases relating to incidents in your area.

To sign up, click here.




The Label: A Story for Families by Caroline White

The Label by Caroline White and Sandra IsakssonBeing a new parent is nerve-jangling enough as it is, but what happens if your baby is not what you were expecting?

How do you deal with the conflicting feelings, a heart assailed by overwhelming love and overwhelming fear, guilt and anxiety as your expectations are rerouted?

This happened to Caroline White. So she pulled together her contrary emotions – the good, the bad and the ugly – and spun them into a poignant and uplifting fable, an inspiration for all new parents who find themselves stumbling along an unfamiliar and unanticipated path.

Written with great honesty and love, The Label is anchored by a simple yet powerful central image, a metaphor for all that is limiting and prescriptive, and explores what happens when you let the label go and watch as your child blossoms into their best life untroubled by negative expectations.

Click here to purchase the book.

WPCC Transitions Information Event

Transitions Information Event – Preparation For Adulthood

Bookings are now open for the next Information Event run by WPCC which takes place on Friday 6th October 2017. 9.30am to 2.00pm, Corn Exchange, Devizes.

More information about the workshops is available on the booking form or on the WPCC website.

This free event is for PARENT CARERS, and PROFESSIONALS who work with children and/or young people aged 0-25 who have Special Educational Needs and/or a disability (SEND), and is designed to help parents and carers to consider some of the things they should be thinking about as their child with SEND approaches adulthood with SEND. A series of workshops will take place during the day alongside a ‘marketplace’ of information from local services and providers in Wiltshire to help with some of the information you need, and to help answer some of the questions you may have.

Following two presentations, a series of workshops will be available during the day covering topics to help young people and their families understand options and plan for their future adult lives. The workshops available are called:-

  • Wiltshire Employment Support Team and Community Connecting
  • Somewhere to Live with the Right Support
  • Young Peoples’ Experiences of Transitioning to Adulthood
  • Journey from School to College and Beyond

Over 25 different providers and services are booked to attend the event to provide information in our ‘Market Place’. A list of confirmed providers is on the flyer, and a brief description of each of the providers is available on the booking form.

Further details of the event are on the flyer. Booking closes at 5pm on Monday 2nd October 2017.

Booking is essential and we look forward to seeing as many of you at the event as possible.

BBC Relaxed Prom

The BBC’s first ever Relaxed Prom is suitable for children and adults with autism, sensory and communication impairments and learning disabilities as well as individuals who are Deaf, hard of hearing, blind and partially sighted.

Click here to listen to the performance. You will need to register to the BBC before you can use any of their content.

Image: Grant Llewellyn and Andy Pidcock © Betna Skovbro

Sleep In Crisis

South Wilts Mencap would like to support Mencap with their campaign #SleepInCrisis by raising awareness and asking our members to sign the petition.

Whilst, at South Wilts Mencap, we do not have any overnight support workers within our team, we recognise the importance of this campaign.

Sign the petition here.

What is the sleep-ins case?

Recently, a number of support workers have taken their employers to employment tribunals to challenge how they are paid for sleep-in shifts.

The tribunals ruled that support workers should be paid the hourly minimum wage for these shifts, with up to 6 years back pay.

Therefore, Mencap has created a petition, calling on the Government to avert a crisis in the sector.

They are urging the Government to fix the problem they have caused by:

  • stopping any HMRC enforcement action until the law is clarified and a final, clear decision is made on back-pay
  • accepting their responsibility and making an urgent, public commitment to fund the back-pay bill.

The future care of the most vulnerable people in our society must be protected.

On Wednesday 27 July 2017 the Government announced a 2 month suspension of HMRC’s enforcement action. But this did not address the catastrophic impact of the back payments on the sector.