Monthly Archives: July 2018

Families views needed to shape local services

The Families and Children’s Transformation Programme (FACT) is a programme of work being undertaken by a wide range of organisations looking to make lives better for children, young people and families.

The organisations involved range from the council, police, NHS and schools to family support services, early years’ providers such as children’s centres, childminders and nurseries and also includes a wide variety of community and voluntary sector partners.

The intention of the programme is to align working priorities and practices as much as possible, to make it easier for people to access consistent information, advice and support from services at a time when they need them. The programme can only do that by working with children, young people and families to find out what is most important to them.

In order to reach as many families as possible, an online survey has been created to gather views on some of the key stages of childhood and parenting. The survey can be answered by parents/carers or by children and young people looking at the questions relevant to them.

The survey is online but Wiltshire Council are also going out to family fun events during the summer to speak to parents and carers:

  • 27 July – Harnham Fun Day
  • 8 August – Friary Fun Day
  • 15 August – Bishopdown Green Fun Day
  • 23 August – Bemerton Heath Fun Day
  • 26/27 August – Devizes International Street Festival & Carnival

The feedback received will help shape a shared partnership strategy which will be the steer for their work in the future. They would like all parents and carers to get involved.

Families and children’s transformation survey 2018 – closes on 7 September 2018.

Please have your say and if you have any further feedback contact FACT@wiltshire.gov.uk.

FACTnewsletterMay2018

home a hub for you

@home has opened up at 5 Bridge Street, Salisbury SP1 2ND. It is open from 10am to 10pm serving food, coffee and alcohol. @home is a fun and vibrant hub that hosts entertainment everyday; from 3pm-6pm it is designed for children and from 8pm-10pm for adults.

A full summer programme of entertainment has been designed for you to enjoy. Take a look at their home – whats on programme. Membership is available which would give you free access to all entertainment sessions throughout the year. @home want you to make this your space to relax in, feel inspired and welcome anytime of the day.

The venue has different rooms, including a sensory room complete with tipi. What better space to take a moment out of a bustling Salisbury city centre and chill out in?!

Follow @home on facebook

Follow @home_Salisbury on twitter

Workshop to Demonstrate Free Music Making Equipment for Children and Young People with SEND

Ruth Jones is the Development Manager at Wiltshire Music Connect – the music education hub for Wiltshire. She would like to improve access to music making for children and young people with special educational needs and disabilities, and social, emotional, and mental health issues.

Please complete their survey here: SKOOG SURVEY

Wiltshire Music Connect have a set of five “Skoogs” and would like to offer two or three free parent and carer introductory workshops across Wiltshire. Your feedback will help them work out when / where the workshops should be held, and after the workshops they will then be able to work out how best to loan the Skoogs free of charge to parents and carers, Opportunity Groups and for Holiday Projects, etc. They have specialist music leaders who are able to lead workshops or deliver one to one music lessons.

Skoog is an accessible digital musical instrument that can be adjusted for a range of sensitivities. It is wireless, and is used with ipads and speakers. Click HERE to watch a short clip (57 seconds) that shows what a Skoog is.

Please complete their survey here: SKOOG SURVEY

Salisbury Umbrella Launch

Launch evening for the umbrella installation: Wednesday 18 July 2018 5:30pm – 7pm in Salisbury High Street. Drinks and canapes thanks to Café Rouge. Music by Limelyte.

You can see the stunning display right through until the autumn and if you get a snap with the umbrellas, share them around on social media using the hashtags #SalisburyUmbrellas #SalisburyCityOfDoves

Funeral for Hazel

The funeral for the late Mrs Hazel Cheeseman will take place at Salisbury Crematorium on Wednesday 25th July at 12.15. It will be followed by refreshments at Cafe Diwali in Crane Bridge Street, Salisbury starting at 2pm. All who knew Hazel and would like to pay their respects, are invited.

The family will provide flowers and ask that anyone who wishes to make a donation, contribute to the South Wilts Mencap Breakaway Holiday scheme. The family ask that people wear whatever they wish, in tribute to Hazel’s selfless, rich and varied life.

Our Friend Hazel

All of us in the South Mencap learning disabled community have been very saddened to hear of the unexpected death of Hazel Cheesman at home in Salisbury.  Hazel has supported people with learning disabilities to speak out for themselves for very many years:  she was well known to and dearly loved by so very many individual members of our LD community.

Hazel worked for many years as a teacher at Sarum Centre, where she supported the Client Union and helped with the production of the Sarum Centre Users newsletter as well as helping many individual service users to develop their independence skills.  She was also key to the setting up of the self-advocacy service that became SISAG (Salisbury Independent Self Advocacy Group).  Her absolute commitment to ensuring that the voice of individual people with learning disabilities was heard and respected was at the centre of everything she did.

But for us at SWM it was her contribution to Breakaway that was her most memorable contribution.  In the “old days” Sarum Centre staff took their members away on group holidays each year.  When this programme was one of things to fall victim to cutbacks in the late 1980s, Hazel conducted a survey amongst Sarum Centre users (in those days more than 100 attending, many every day of the week) to find out what members most wanted.  The answer came back loud and clear that the chance to go on holiday with their friends to a place of their own choice was right at the top of the list.  And so Breakaway, the South Wilts Mencap holiday and leisure, scheme was born, at first with Jan Bayliss, then Faith Walker and lastly under the wonderful management of Catherine Hall.   We have to remember that back then it was a very new and wonderful idea that people with learning disabilities wanted to travel the world and have fun just like everyone else.

More recently Hazel has worked as one of the respite care team at Bradbury House but she has also been a vital member of the team that delivers Breakaway, both as part of the group that plans the holidays in line with members’ wishes but also in leading some holidays herself including Butlins trips, Disneyland Paris, the Isle of Wight and Yorkshire.  Over the last few years she has been a highly valued support carer on holidays for Catherine every year.   She has been Honorary Secretary of the Breakaway sub-committee for years, doing so much of the backroom work, and always bought the tickets and organised the sellout London theatre trips.   She will be particularly sadly missed by Breakaway.  Catherine says “Without Hazel’s input and passion I don’t think Breakaway would have been so successful and where it is today.”

Outside of work Hazel was an intrepid traveller, passionate about the arts and immensely proud of her beloved sons Daniel and Edward and daughter in law Jo and adored grandchildren Ollie and Bea: we send them our love and deepest sympathy.  We will make sure we tell you when funeral arrangements have been made.   Very many of us will want to be there to pay tribute to Hazel’s life, work and spirit.   Hazel’s family has asked that Anne Trevett act as a contact for anyone wanting to know more.  Anne can be reached on 01722 326261 or anneinbemerton@gmail.com

Survey: Gluten-free foods on prescription

In February 2018 the Department of Health and Social Care (DHSC) announced its decision to nationally restrict the prescribing of gluten-free foods. This is in response to the public consultation in 2017 on the ‘Availability of gluten-free foods on NHS prescription’.

Wiltshire CCG’s current policy permits the prescribing of gluten-free staple foods for patients with a diagnosis of coeliac disease and/or dermatitis herpetiformis, with the following guidance:

  • Gluten-free prescribing should focus on enabling people with coeliac disease to access gluten-free staple foods, (bread, bread mix, flour, flour mix and pasta) free of charge on NHS prescription, as part of a healthy balanced diet.
  • Sweet biscuits and cakes should not be prescribed based on the grounds of supporting healthy lifestyles and the fact that gluten-free products are available at competitive prices in supermarket.
  • Any gluten-free foods prescribed for patients without a confirmed diagnosis should not be prescribed.

Between April 1st 2017 and March 31st 2018, gluten-free foods on prescription cost NHS Wiltshire £241,487.

Wiltshire CCG is asking the public, patients and clinicians to have their say by completing a survey on two proposed options that will change the prescribing approach to gluten-free foods in Wiltshire, in line with National Institute of Care and Excellence (NICE) guidelines.

Complete the survey

The survey closes on July 22nd 2018

Universal Credit

Mencap want to hear from people with a learning disability, their supporters, families and carers about their experience with the benefit called Universal Credit.

  • How did you/ they find applying for it?
  • How well is it working for you/ them?
  • Did you/ they have any problems?

Mencap’s Policy team will organise a number of meetings around the country to hear about your experiences in September. RMS will pay for the participant and their supporter’s travel expenses.

If you or people you support would like to talk to us about Universal Credit, please email the Network Office.

DadPad

What is the DadPad?
It’s the essential guide for new dads, developed with the NHS.

Why do you need it?
As a new dad you will feel excited, but you may also feel left out, unsure or overwhelmed. The DadPad can help by giving you the knowledge and practical skills that you need.  The resource will support you and your partner to give your baby the best possible start in life.

Introducing DadPad Neonatal
Being a parent of a child in neonatal care can come with lots of other emotions and problems. DadPad Neonatal offers additional help and support in these situations.

Visit the DadPad website

Download the DadPad App from Google Play store or Apple store